Tag: parenting a child with Down syndrome
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What Broke Me More Than the Diagnosis Itself
Knowing, Wanting, and Choosing From the Very Beginning This is an honest story about what hurt more than a Down syndrome diagnosis during pregnancy—lack of support, harmful comments, and learning to survive day by day. I learned about my son’s Down syndrome diagnosis at 12 weeks of pregnancy. It was a shock, of course —…
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Living in the Countryside: Joys, Challenges, and Raising a Child with Down Syndrome
We live in the countryside.Our village has around 100 people. The nearest town, with about 10,000 residents, is a one-hour drive away. This is a huge luxury when you consider how many people around the world live in matchbox-sized apartments in concrete apartment blocks. No wonder birth rates are so low. Children are born where…
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What People Say About Down Syndrome and Refusing Prenatal Testing
This post responds to common comments about Down syndrome and prenatal testing that people were telling me. When our son received a prenatal diagnosis of Down syndrome, we also received something else: opinions. Some were spoken gently, others bluntly or even cruelly. Over time, I noticed that many comments followed the same patterns. Below are…
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Our Journey with Down Syndrome: Choosing Love, Not Fear
My Pregnancy and the Diagnosis As I’ve written before, during my Down syndrome pregnancy, we found out early that our second child — a son — had been diagnosed. There was never any question that we wanted him. To me, it didn’t make sense that I could be overjoyed to find out I was pregnant…