Tag: Down syndrome journey
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Our Last Day Out as a Family of Four: Spa, Gratitude, and Quiet Joy
A delayed Christmas gift that became something more Back in January, we were invited to a Christmas party for children with special needs. It had been postponed, but that didn’t make it any less meaningful. Our two-year-old son, who has Down syndrome, was invited, and of course we went – together with our four-year-old daughter.…
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Another Long Day in the City: Appointments, Emotions, and a Brave Little Boy
Getting There Against All Odds Yesterday, we headed to the capital again. Another intense, exhausting day. This time, I chose to go by car because the bus schedules simply didn’t work. My 2-year-old son, who has Down syndrome, has been followed by the children’s hospital since birth. In the early years, we had appointments 3-4…
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A Long Day, A Brave Boy: Our Journey with Hearing Loss and Down Syndrome
From the Very Beginning My 2-year-old son has Down syndrome, and his hearing journey started right after birth. Already in the hospital, he passed the newborn hearing screening in only one ear. The other ear did not pass. I knew from when I was pregnant that Down syndrome hearing loss is very common. From that…